Caregivers

Posted on June 29, 2018 in Patients, Caregivers

Ever tried or thought about making your own BBQ sauce? I have! I enjoy being creative with food so I thought why not try and make homemade BBQ sauce for baby back ribs.

Posted on January 10, 2018 in Patients, Caregivers

Explaining a diagnosis of cystic fibrosis to family members and friends can be a challenge. Here we try to make it a little less difficult.

Posted on July 7, 2017 in Patients, Caregivers

By Kim Kromash

It’s SUMMER TIME!! Can you believe it? This year has gone by way too fast! But I guess we say that every year… With Florida’s hot and sweaty summer being here, I have to think of activities to keep the kids entertained and busy and having one child with cystic fibrosis, that is not always an easy task. 

Posted on June 21, 2017 in Caregivers

By Kim Kromash, CF Mom

As a mother of a child with cystic fibrosis, I'm not one hundred percent sure what it’s exactly like having a brother or sister with cystic fibrosis but, I do have two boys that are two years apart, one with cystic fibrosis and the other without cystic fibrosis. I can tell you what it's like having a sibling with cystic fibrosis through a mother’s eyes.

Posted on June 18, 2017 in Patients, Caregivers

By Kim Kromash, CF Mom

With today being father’s day what a good time to acknowledge what a great father and caregiver my husband is to our son with cystic fibrosis. From day one my husband has been very hands on and helpful with our son Joey.

Posted on May 16, 2017 in Patients, Caregivers

Written by Stacy Motenko

Travel has always been a passion of mine - so much so that I decided to study abroad in Sydney, Australia when I was a junior in college.  Then a few years after college, I moved back to Australia for seven months. I have eaten sushi in Japan, seen the ruins in Italy and been snorkeling in Fiji.

But as glamorous as that may sound, traveling with cystic fibrosis is complicated and requires immense preparation and organizational skills. I have learned the hard way when I am not adequately prepared for a trip or when my medical equipment fails in a foreign country.

 

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